The Surge to Save Newborns Act would: Help states move recommended newborn screening conditions from federal recommendation to implementation. Provide dedicated resources to address state implementation needs while preserving state responsibility for operating newborn screening programs. Create annual visibility into which recommended conditions each state has and has not yet implemented. Pair federal funding with accountability by requiring HHS to assess grant effectiveness and report back to Congress.
Create annual reporting on which recommended newborn screening conditions each state has and has not implemented.
Occurrences
Evidence
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“(c) Annual reports.—Not later than the end of fiscal year 2027, and each fiscal year thereafter through the end of fiscal year 2031, the Secretary shall submit to Congress a report that includes— “(1) a State-by-State identification of newborn screening implementation for conditions on the recommend uniform screening panel referred to in subsection (a), including— “(A) associated conditions; and “(B) for each State, the specific conditions for which screening has not been implemented;
unverified · Source version 85176 · locator unknown
By Mr. LANGWORTHY (for himself, Ms. SCHRIER, Mr. BALDERSON, Mr. FITZPATRICK, Mr. BILIRAKIS, Ms. TENNEY, Mr. BARRETT, Ms. BARRAGÁN, Ms. CLARKE of New York, Ms. GILLEN, Mr. GOTTHEIMER, and Mr. PANETTA): H.R. 10571. A bill to amend the Public Health Service Act with respect to State support for newborn screening, and for other purposes; to the Committee on Energy and Commerce.
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