I am proud to lead this bipartisan effort to make that a reality.
Lead the bipartisan effort to establish National Shwachman-Diamond Syndrome Awareness Day.
Occurrences
Evidence
legacy_unverified · Source version not recorded · locator unknown
The introduced House resolution identifies H. Res. 1133 as designating November 7 of each year as "Shwachman Diamond Syndrome Awareness Day." It states that Mr. Kean, for himself and Mr. Gottheimer, submitted the resolution, which was referred to the Committee on Energy and Commerce.
legacy_unverified · Source version not recorded · locator unknown
Kean's office announced that Congressman Tom Kean, Jr. and Congressman Josh Gottheimer introduced a bipartisan resolution designating November 7 of each year as National Shwachman Diamond Syndrome Awareness Day, and quoted Kean saying he was proud to lead the bipartisan effort.
Assessments
Kean did lead a bipartisan federal effort by sponsoring H.Res. 1133 with Democratic Rep. Josh Gottheimer to designate November 7 as Shwachman-Diamond Syndrome Awareness Day. But the latest available legislative status shows the resolution was only introduced/referred to the House Energy and Commerce Committee on March 24, 2026, with no House adoption or enactment establishing the national awareness day. This is a serious same-term legislative attempt, not a delivered outcome.